Lived Experiences of the Caregivers of Infants about Family-Centered Care in the Neonatal Intensive Care Unit: A Phenomenological Study | ||
| Iranian Journal of Neonatology | ||
| مقاله 3، دوره 9، شماره 1، خرداد 2018، صفحه 13-23 اصل مقاله (809.42 K) | ||
| شناسه دیجیتال (DOI): 10.22038/ijn.2017.23595.1294 | ||
| نویسندگان | ||
| Zahra Hadian Shirazi1؛ farkhondeh sharif* 1؛ Mahnaz Rakhshan1؛ Narjes Pishva2؛ Faezeh Jahanpour3 | ||
| 1Community-Based Psychiatric Care Research Center, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran | ||
| 2Neonatology Research Center, School of Medicine, Shiraz University of Medical Sciences, Shiraz, Iran | ||
| 3School of Nursing and Midwifery, Bushehr University of Medical Sciences, Bushehr, Iran | ||
| چکیده | ||
| Background: Family-centered care (FCC) has recently been recognized as the most effective approach in pediatric and family care. Despite the emphasis of healthcare systems on commitment to the philosophy and application of FCC, the nature of this method remains unknown in the related studies. The present study aimed to describe and interpret the experiences of professional and familial caregivers about FCC in the neonatal intensive care unit (NICU) to reveal its structure and essence. Methods: The study was conducted using Van Manen’s phenomenological approach on 18 participants, including 10 professional and eight familial caregivers, who were interviewed. In addition, the interactions between the caregivers during the FCC practice were observed closely. Data were collected from the interviews, and the field notes were transcribed. Data analysis was performed using Van Manen’s thematic analysis. Results: Four main themes and 12 subthemes emerged in the study. Experiences of the caregivers about FCC were manifested through the themes of ‘restoring stability’ (subthemes: ‘reconstituted family’, ‘comprehensive advocacy’, and ‘meta-family interaction’), ‘oriented coalition’ (subthemes: ‘family as a care partner’, ‘professional group action’, ‘unity of action in caregivers’, and ‘collaborative space governance’), ‘dynamics of care’ (subthemes: ‘family as an agent for the advancement of professional caregivers’, ‘perceived status of problem-solving’, and ‘confrontation of caregivers’), and ‘empowering the family caregivers’ (subthemes: ‘accompanying to learn’ and ‘functional evolution’). Conclusion: According the results, FCC is a dynamic care intervention, which is established through purposeful interactions between heterogeneous group members (professional and familial caregivers) in order to achieve care goals and create balance in all caregivers. Moreover, the approach enables familial caregivers to play their role efficiently. Application of this comprehensive care requires the attention of healthcare policymakers and managers to provide the proper context for optimal care provision in the NICU. | ||
| کلیدواژهها | ||
| Family-centered nursing؛ Neonatal Intensive Care Unit؛ Qualitative research | ||
| مراجع | ||
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1. Van Riper M. Family-provider relationships and well-being in families with preterm infants in the NICU. Heart Lung. 2001; 30(1):74-84. 2. Cone S. The impact of communication and the neonatal intensive care unit environment on parent involvement. Newborn Infant Nurs Rev. 2007; 7(1):33-8. 3. Örtenstrand A, Westrup B, Broström EB, Sarman I, Åkerström S, Brune T, et al. The Stockholm Neonatal Family Centered Care Study: effects on length of stay and infant morbidity. Pediatrics. 2010; 125(2): e278-85. 4. Heidari H, Hasanpour M, Fooladi M. The Iranian parents of premature infants in NICU experience stigma of shame. Med Arh. 2012; 66(1):35-40. 5. Saunders RP, Abraham MR, Crosby MJ, Thomas K, Edwards WH. Evaluation and development of potentially better practices for improving familycentered care in neonatal intensive care units. Pediatrics. 2003; 111(4 Pt 2):e437-49. 6. Martins LA, da Silva DS, Aguiar AC, Morais AC. Insertion of the family in the neonatal intensive care unit: a systematic review. Rev Enferm UFPE. 2012; 6(4):861-8. 7. Frost M, Green A, Gance-Cleveland B, Kersten R, Irby C. Improving family-centered care through research. J Pediatr Nurs. 2010; 25(2):144-7. 8. McKiernan M, McCarthy G. Family members’ lived experience in the intensive care unit: a phemenological study. Intensive Crit Care Nurs. 2010; 26(5):254-61. 9. Manning AN. The NICU experience: how does it affect the parents' relationship? J Perinat Neonatal Nurs. 2012; 26(4):353-7. 10. Trajkovski S, Schmied V, Vickers M, Jackson D. Neonatal nurses’ perspectives of family‐centred care: a qualitative study. J Clin Nurs. 2012; 21(17‐18):2477-87. 11. Griffin T, Abraham M. Transition to home from the newborn intensive care unit: applying the principles of family‐centered care to the discharge process. J Perinat Neonatal Nurs. 2006; 20(3):243-9. 12. Shields L. Family-centred care: effective care delivery or sacred cow? Forum Public Policy. 2011; 2011:1. 13. Wong DL. Wong's nursing care of infants and children. New York: Mosby/Elsevier; 2011. 14. King L. Family-centred care: a review of current literature. Plymouth Stud J Health Soc Work. 2009; 2:9-17. 15. Malusky SK. A concept analysis of family-centered care in the NICU. Neonatal Netw. 2005; 24(6):25-32. 16. Mikkelsen G, Frederiksen K. Family‐centred care of children in hospital–a concept analysis. J Adv Nurs. 2011; 67(5):1152-62. 17. MacKean GL, Thurston WE, Scott CM. Bridging the divide between families and health professionals’ perspectives on family‐centred care. Health Expect. 2005; 8(1):74-85. 18. Staniszewska S, Brett J, Redshaw M, Hamilton K, Newburn M, Jones N, et al. The POPPY study: developing a model of family‐centred care for neonatal units. Worldviews Evid Based Nurs. 2012; 9(4):243-55. 19. Ramezani T, Hadian Shirazi Z, Sabet Sarvestani R, Moattari M. Family-centered care in neonatal intensive care unit: a concept analysis. Int J Community Based Nurs Midwifery. 2014; 2(4): 268-78. 20. Bastani F, Abadi TA, Haghani H. Effect of familycentered care on improving parental satisfaction and reducing readmission among premature infants: a randomized controlled trial. J Clin Diagn Res. 2015; 9(1):SC04-8. 21. Shields L. Questioning family‐centred care. J Clin Nurs. 2010; 19(17‐18):2629-38. 22. Burns N, Grove SK. Understanding nursing research: building an evidence-based practice. 5th ed. New York: Elsevier Saunders; 2011. 23. Van Manen M. Researching lived experience: human science for an action sensitive pedagogy. New York: State University of New York Press; 2001. 24. Dowling M. From husserl to van manen. a review of different phenomenological approaches. Int J Nurs Stud. 2007; 44(1):131-42. 25. Ehrich LC. Revisiting phenomenology: its potential for management research. British Academy of Management Conference, London; 2005. 26. Van Manen M. Phenomenology of practice: meaninggiving methods in phenomenological research and writing. California: Left Coast Press; 2014. 27. Obeidat HM, Bond EA, Callister LC. The parental experience of having an infant in the newborn intensive care unit. J Perinat Educ. 2009; 18(3): 23-9. 28. Turan T, Başbakkal Z, Özbek Ş. Effect of nursing interventions on stressors of parents of premature infants in neonatal intensive care unit. J Clin Nurs. 2008; 17(21):2856-66. 29. Malakouti J, Jebraeili M, Valizadeh S, Babapour J. Mothers’ experience of having a preterm infant in the Neonatal Intensive Care Unit, a Phenomenological Study. J Crit Care Nurs. 2013; 5(4):172-81. 30. Newnam KM, McGrath JM. Following the diagnosis of neonatal hypoxic ischemic encephalopathy: a family-centered approach. Newborn Infant Nurs Rev. 2011; 11(3):98-101. 31. Molina RC, Fonseca EL, Waidman MA, Marcon SS. The family's perception of its presence at the pediatric and neonatal intensive care unit. Rev Esc Enferm USP. 2009; 43(3):630-8. 32. Follett TL. Nurses' perceptions of practicing familycentred care in the neonatal intensive care unit. Michigan: ProQuest; 2006. 33. Fegran L, Fagermoen MS, Helseth S. Development of parent–nurse relationships in neonatal intensive care units–from closeness to detachment. J Adv Nurs. 2008; 64(4):363-71. 34. Hadian Shirazi Z, Sharif F, Rakhshan M, Pishva N, Jahanpour F. Lived experience of caregivers of family-centered care in the neonatal intensive care unit: "evocation of being at home". Iran J Pediatr. 2016; 26(5):e3960. 35. Raiskila S, Axelin A, Rapeli S, Vasko I, Lehtonen L. Trends in care practices reflecting parental involvement in neonatal care. Early Hum Dev. 2014; 90(12):863-7. 36. Manogaran M. The role of interprofessional collaboration on the discharge planning process in the neonatal intensive care unit. Ontario: University of Ontario Institute of Technology; 2011. 37. Barbosa VM. Teamwork in the neonatal intensive care unit. Phys Occup Ther Pediatr. 2013; 33(1): 5-26. 38. Mundy CA. Assessment of family needs in neonatal intensive care units. Am J Crit Care. 2010; 19(2):156-63. 39. Cleveland LM. Parenting in the neonatal intensive care unit. J Obstet Gynecol Neonatal Nurs. 2008; 37(6):666-91. 40. Kearvell H, Grant J. Getting connected: how nurses can support mother/infant attachment in the neonatal intensive care unit. Aust J Adv Nurs. 2010; 27(3):75. 41. Gephart SM, McGrath JM. Family-centered care of the surgical neonate. Newborn Infant Nurs Rev. 2012; 12(1):5-7. | ||
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